andrepereira: International Symposium: Convention on Human Rights and Biomedicine

COIMBRA 11-12 JULY 2011

Centre for Biomedical Law

Faculty of Law, University of Coimbra

http://www.centrodedireitobiomedico.org/

World Association for Medical Law (co-sponsored)

http://www.thewaml.com/

International Symposium:

Convention on Human Rights and Biomedicine – updated or outdated?

11 July 2011

9H00 – OPENING SESSION

Chairperson: Prof. Dr. João Gabriel SILVA – (Rector of the University of Coimbra) (invited)

9h05 – Prof. Dr. António SANTOS JUSTO (Dean of the Faculty of Law) (invited)

9h10 – Welcome address: Prof. Dr. Guilherme de OLIVEIRA (Director of the Centre for Biomedical Law)

9h15 – Prof. Dr. Thomas NOGUCHI – (President of the World Association for Medical Law) – (Video): “The role of the WAML”

9h20-10h30 - PRINCIPLES

Chairperson: Prof. Dr. Guilherme de OLIVEIRA (Director of the Centre for Biomedical Law)

· Lia NEVES – Health: a non static phenomenon

· Radmila HREVTSOVA – Ensuring equitable access to health care in East European countries: problems and prospects

· Luís VALE – Access to health care, between rationing and responsiveness: problem(s) and meaning

11h00-13h30 – INFORMED CONSENT

Chairperson: Dr. Fernando GOMES (President of the Centre Region Council of the Portuguese Medical Association) –

Comments: Prof. Dr. Maria José CARNEIRO DE SOUSA PINTO DA COSTA (Professor of Legal Medicine – University of Porto)

· Rafael VALE REIS, Medical Research Using Biobanks: Do We Need To Boost Our Concept Of Informed Consent?

· Eduardo DANTAS – Informed Consent and Informed Choice

· Fabiana REGO/ Mara FREITAS - Previously expressed wishes

· Washington FONSECA – Assisted suicide, euthanasia, orthotanasia: the inadmissibility of the right to kill terminally ill patients.

· Cecília FONSECA – Law(s) without borders - Reflections on Comparative Law.

14h30-15h30 - PRIVATE LIFE AND RIGHT TO INFORMATION

Chairperson: Prof. Dr. Helena MONIZ (Professor of Law – University of Coimbra)

· Jean HERVEG – The Right to Private Life in the field of Biomedicine

· Lukáš PRUDIL – Privacy protection in the times of Facebook

15h45-17h00 - HUMAN GENOME

Chairperson: Prof. Dr. João LOUREIRO (Professor of Law – University of Coimbra)

· Anne-Marie DUGUET - Genetic information

· Camilla FITTIPALDI – The Additional Protocol to the Oviedo Convention on Genetic Testing for Health Purposes: step forward against the direct-to-consumer genetic testing services?

· Elisabete FERREIRA - Intangibility of human genetic identity: Is this really a human right? Why?

· Alexandre PEREIRA: Human genes as biotechnological corporate assets?

12 July 2011

9h00-10h30 - HUMAN GENOME/ ASSISTED REPRODUCTION TECHNOLOGIES

Chairperson: Prof. Dr. SINDE MONTEIRO (Professor of Law – University of Coimbra)

· Allane MADANAMOOTHOO - The Oviedo Convention and Surrogacy

· Margarida SILVESTRE – Sex selection and assisted reproduction technologies.

11h00-13h00 - SCIENTIFIC RESEARCH

Chairperson: Dr. Maria de Belém ROSEIRA (Former Minister of Health, Member of Parliament)

Comments: Prof. Dr. Céu RUEFF (Post-Doc Researcher of the Centre for Biomedical Law)

· Annagrazia ALTAVILLA – Research with children: current trends and perspectives

· André NIGRE – Vipeholm, 66 years a bridge between benevolent paternalism and autonomy.

· Vera RAPOSO - Juridical Status of Human Embryos and Foetus at the Oviedo Convention

· Maria MERUJE – Article 18 of the Convention on Human Rights and Biomedicine – the case for embryonic stem cells

14h30-16h00 - ORGAN AND TISSUE REMOVAL FROM LIVING DONORS FOR TRANSPLANTATION PURPOSES and PROHIBITION OF FINANTIAL GAIN AND DISPOSAL OF A PART OF THE HUMAN BODY

Chairperson: Prof. Dr. FARIA-COSTA (Professor of Law – University of Coimbra)

· Lydia NUNES - Brief observations about organ and tissue removal from living donors for transplantation in Brazilian law

· Gonçalo MELO BANDEIRA: Of course that we need an international convention that helps to avoid trafficking in organs - some old-new civil and criminal aspects

· Natalia LOJKO: Biotechnology and intellectual property - should patents be moral?

16h15-17h30 - INFRINGEMENTS OF THE PROVISIONS OF THE CONVENTION

Chairperson: Prof. Dr. Anne-Marie DUGUET (Professor of Legal Medicine – University of Toulouse III (Paul Savatier) ; Director of the « Association de Recherche et de Formation en Droit Médical »)

· Jana KOLÁČKOVÁ - Bioethics and biomedicine in the ECHR case-law

· Katerina CERNEVA - Patients´ Complaint Proceeding and the Oviedo Convention in the Czech Republic

· Mafalda MATOS – ‘Off-Label’ – Off-Law?

· Marta VICENTE – Wrongful life actions

17h30 – Conclusions

· Prof. Dr. Guilherme de OLIVEIRA (Director of the Centre for Biomedical Law)

· André PEREIRA (Member of the Direction of the Centre for Biomedical Law; Governor of the World Association for Medical Law)

Executive Director:

André Pereira

andreper@fd.uc.pt

Organization/ INSCRIPTIONS

Centro de Direito Biomédico